Publicado por CSSF el 4 November, 2022
On October 27th and 28th 2022, the “Filum System Medical for physiotherapists” course will take place at ICSEB (Barcelona). This course will be imparted by the Filum Academy of Barcelona (FAB) and the Institut Chiari & Siringomielia & Escoliosis de Barcelona- with the collaboration of the Chiari & Scoliosis & Syringomyelia Fundació Privada-. The participating…
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Publicado por CSSF el 18 June, 2022
The Board of Trustees of the Chiari & Scoliosis & Syringomyelia Fundació Privada held its annual meeting on the 16th of June 2022 at the foundation’s new headquarters, located at Paseo Manuel Girona, 30-32 (Casa ICSEB). At the meeting, the annual accounts corresponding to the 2021 financial year were examined and approved, the change of…
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Publicado por CSSF el 2 January, 2022
The Chiari & Scoliosis & Syringomyelia private foundation (CSSf) communicates to all its collaborators and friends that Dr. Marco V. Fiallos Rivera was appointed Patron of our foundation in the year 2021. He is a neurosurgeon in the medical team of the Institut Chiari & Siringomielia & Scoliosis de Barcelona since its inception and has…
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Publicado por CSSF el 28 February, 2021
28 February 2021, Rare Disease Day In the context of the Rare Disease Day, at the Chiari & Scoliosis & Syringomyelia Foundation (CSSf) we would like to draw attention to the strong impact that living with a rare disease has on the different spheres of life of those who suffer from it and the great…
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Publicado por CSSF el 27 February, 2020
We are happy to announce to all our friends and collaborators that Mr. Salvador Sadurní Urpí, FC Barcelona goalkeeper in the 70s, has been named benefactor of the Chiari & Scoliosis & Syringomyelia Foundation. As you can see in the pictures, Dr. Miguel B. Royo Salvador, President of the Board of Trustees of the…
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Publicado por CSSF el 30 January, 2020
The Chiari & Scoliosis & Syringomyelia Foundation (CSSf) communicates with great satisfaction to all its collaborators and friends that Ms. Mara Linette Espino Hernandez, deputy director of the Institut Chiari & Siringomielia & Scoliosis of Barcelona, has been designated Patron of our foundation. Ms. Espino has collaborated with the foundation since its start, in…
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Publicado por CSSF el 12 November, 2019
The Chiari & Scoliosis & Syringomyelia Foundation (CSSf) sincerely thanks Mr. Manuel Royo Salvador, who has been our Secretary for more than 10 years, for his contribution to our foundation. Likewise, we inform all our friends and collaborators that Ms. Marta Guerrero Sánchez-Puerta, lawyer and assistant to the management of the Institut Chiari &…
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Publicado por CSSF el 28 August, 2019
We are pleased to inform you that Dr. Miguel Royo-Salvador, director of the Institut Chiari & Siringomielia & Escoliosis de Barcelona, has been awarded with the Dr. Gómez Ulla Award for Health Excellence 2019 bye the Institute for Professional Excellence (Instituto de Excelencia Profesional –IEP) this past 28th of June 2019, in recognition of his…
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Publicado por CSSF el 11 July, 2019
Here at the Chiari & Scoliosis & Syringomyelia Foundation, we are very proud to communicate that since May 8, 2019, we count on the distinguished human and professional support of Dr. Frederic Llordachs i Marques on the Board of Trustees of the CSSf. He brings his great experience to our foundation in an entirely altruistic…
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Publicado por CSSF el 20 June, 2019
Here at Chiari & Scoliosis & Syringomyelia Foundation, we are pleased to announce that we already have the new version of Filum System®: A Brief Guide in Chinese! We currently have the Filum System®: A Brief Guide in 8 languages: Spanish, French, Italian, Polish, Russian, English, Portuguese and Chinese. We hope that our hard work of translation…
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Publicado por CSSF el 3 June, 2019
We express our deepest condolences on the demise of the great science communicator Eduard Punset. He was born in Barcelona in 1936 and was the author of several books on science, economic analysis and social reflection. He graduated in law and with studies in economics, he also practised politics and teaching. He defended arguments…
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Publicado por CSSF el 15 April, 2019
It’s matter of huge satisfaction and pride for our Foundation to communicate that three Trustees of the Chiari & Scoliosis & Syringomyelia Foundation (CSSf) have received important prizes in their professional activities. The President of the Chiari & Scoliosis & Syringomyelia Foundation, Dr. Miguel B. Royo-Salvador, has been honoured as a Member of the Distinguished Academy…
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Publicado por CSSF el 6 March, 2019
We have pleasure to announce that Dr. Miguel B. Royo-Salvador, President of the Chiari & Scoliosis & Syringomyelia Foundation, has been honoured as a member of the Distinguished Academy of Science and Health Ramón y Cajal las 23 February 2019 for his research and international standing. Press release Distinguished Academy Ramón y Cajal
Publicado por CSSF el 28 February, 2019
The theme for Rare Disease Day this year is “bridging health and social care”, with the objective of bridging the gaps of communication and coordination among all services, to improve the patient’s well-being. Knowledge and information are key for both medical and social professionals, as well as for patients and their families. Understanding the disease…
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Publicado por CSSF el 14 January, 2019
The Chiari & Scoliosis & Syringomyelia Foundation and the Institut Chiari & Syringomyelia & Scoliosis de Barcelona are saddened to announce that Xavier Antón Fernández passed away last January 12, after a long struggle with his illness. Xavier Antón was the Manager of the Institute and Patron of the Foundation, a great example of professional…
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Publicado por CSSF el 11 January, 2019
On January 2, Dr. Josep Maria Domènech, Patron of Chiari & Scoliosis & Syringomyelia Foundation, left us. He participated in the investigation of the new Filum Disease with his scientific, academic and personal support. Dr. Royo Salvador, President of the Foundation, highlighted Professor Domènech’s clear intelligence, his enthusiasm for knowledge and total and exclusive dedication…
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Publicado por CSSF el 30 October, 2018
On Friday October 26th, 2018, Chiari & Scoliosis & Syringomyelia Foundation’s 10th-anniversary celebration took place in the Auditorium of the Col·legi Oficial de Metges de Barcelona (Official Medical Board of Barcelona). The event was attended by more than a hundred people, including Mr Francesco Latronico, Deputy Consul Officer of the Consulate of Italy in Barcelona,…
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Publicado por CSSF el 29 June, 2018
The entry to the event is free. Please confirm your attendance by registering at the following link: https://www.eventbrite.es/e/entradas-tutta-colpa-di-arnold-48131301017 The Chiari & Scoliosis & Syringomyelia Foundation (CSSf), in collaboration with the Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB) and the Col.legi Oficial de Metges de Barcelona (Medical Board of Barcelona), organises an…
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Publicado por CSSF el 20 June, 2018
The Chiari & Scoliosis & Syringomyelia Fundació privada (CSSf) will be turning 10 years old in the upcoming month of November, during this year 2018. The CSSf was constituted with one basic goal, the reason for its creation; the propagation and application of the Dr. Miguel B. Royo-Salvador’s medical findings with the support and…
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Publicado por CSSF el 10 May, 2018
Today on May 10th, we congratulate Mr. Manuel M. Royo Salvador, Secretary of the Chiari & Scoliosis & Syringomyelia Foundation (CSSf) on his 70th birthday.. From the Institut Chiari & Siringomielia & Escolioisis de Barcelona and from the CSSf, we thank you for all your dedication and irreplaceable contribution to the mission…
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Publicado por CSSF el 7 December, 2017
The Board of the Chiari & Scoliosis & Syringomyelia Private Foundation would like to remind interested patients that in compliance with one of CSSf’s founding objectives, namely social aid, and in the measures of the available financial resources, CSSf awards financial aid to cover part of the costs for the surgical procedure of the treatment…
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Publicado por CSSF el 4 December, 2017
Support CSSf in its struggle against the Filum Disease Join our campaign!
Publicado por CSSF el 18 October, 2017
On Saturday, October 7th 2017, at the Theatre San Luigi Guanella in Rome, the cultural solidarity event in support of patients with the diagnoses of the Arnold-Chiari Syndrome Type I, idiopathic Syringomyelia and Scoliosis and other conditions related to the Filum Disease. The event, that has been organized by the Chiari & Scoliosis & Syringomyelia…
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Publicado por CSSF el 9 October, 2017
On the afternoon of past Saturday, 7 October, at the Theatre San Luigi Guanella in Rome, the cultural solidarity event in support of patients with the diagnoses of the Arnold-Chiari Syndrome Type I, idiopathic Syringomyelia and Scoliosis and other conditions related to the Filum Disease. The event, that has been organized by the Chiari &…
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Publicado por CSSF el 6 October, 2017
This weekend, the San Luigi Guanella Theatre in Rome, Italy, will be the setting of the cultural solidarity event in support of patients with the diagnoses of the Arnold-Chiari Syndrome Type I, idiopathic Syringomyelia and Scoliosis and other conditions related to the Filum Disease. The event, that has been organized by the Chiari & Scoliosis…
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Publicado por CSSF el 18 September, 2017
Ladies and Gentlemen, We are pleased to announce that the Chiari & Scoliosis & Syringomyelia Foundation (CSSf), in cooperation with the Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB) and the association AI.SAC.SI.SCO Onlus, is organizing a cultural solidarity event in support of patients with the diagnoses of the Arnold-Chiari Syndrome Type I, idiopathic…
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Publicado por CSSF el 21 July, 2017
Artistic expressions by patients, relatives and well-wishers affected by the Filum Disease We are pleased to inform you that the artistic solidarity event, organized by the Chiari & Scoliosis & Syringomyelia Foundation (CSSf) in collaboration with AI.SAC.SI.SCO Onlus Association and the Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB), will be held next 7…
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Publicado por CSSF el 14 June, 2017
On June 7, 2017, a meeting of the Trustees of our Foundation took place at its registered office to approve the cessation of late Dr. Dn. Juan Solé Llenas as trustee and the appointment of Dr. Alfonso Rodríguez Baez and Mr. Luis Javier Antón Fernández as new trustees. Following are some of the relevant data…
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Publicado por CSSF el 9 June, 2017
The “Chiari & Scoliosis & Syringomyelia Fundació Privada”, communicates that our trustee, Dr. Juan Solé Llenas, former director of the “Institut Neurològic de Barcelona” and author of the first book of Neuroradiology in Spanish, passed away on May 4, 2017. The Foundation has expressed its deepest gratitude to his relatives, and now does…
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Publicado por CSSF el 17 May, 2017
Call to participate by the Chiari & Scoliosis & Syringomyelia Foundation (CSSf) Artistic expressions by patients, relatives and well-wishers affected by the Filum Disease Share your art and support Filum Disease patients The Chiari & Scoliosis & Syringomyelia Foundation (CSSf), in cooperation with the Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB)…
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Publicado por CSSF el 20 March, 2017
The members of the management teams of the Chiari & Scoliosis & Syringomyelia Foundation (CSSf) and the Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB) were at the Barcelona harbour past Sunday, 19th of March, to welcome the rally drivers that make up “Gazelles against Chiari”. One of them is Emmanuelle Tarquini, a patient…
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Publicado por CSSF el 16 March, 2017
French patient Emmanuelle Tarquini has an important date in March, the “Women’s Month”. On the morning of the 19th, she and her teammate, Cécilia Merló, will weigh anchor and leave from harbour of Barcelona for Morocco, where they will take part in the 27th edition of the Rallye Aïcha des Gazelles, the only off-road competition…
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Publicado por CSSF el 8 July, 2016
Here at the Institut Chiari & Siringomielia & Escoliosis de Barcelona, we are pleased to announce that the book Filum System® A Short Guide is currently available in translation into French, Italian and Polish. Moreover, very soon it will be available in English and Russian. We hope that our hard work of translation will be…
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Publicado por CSSF el 6 July, 2016
Link of the news: https://france3-regions.francetvinfo.fr/haute-normandie/eure/guerie-en-espagne-laurence-se-bat-pour-etre-remboursee-par-la-securite-sociale-929483.html News summary: Laurence Guillois. Arnold-Chiari I syndrome. Idiopathic scoliosis, Multiple discopathy. Françoise Simon. Syringomyelia and idiopathic scoliosis. Multiple discopathy. Emmanuelle Tarquini, Arnold-Chiari I syndrome, Idiopathic scoliosis. The patients Laurence Guillois, Françoise Simon and Emmanuelle Tarquini are fighting to be reimbursed by the French social security and to get the surgical…
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Publicado por CSSF el 5 July, 2016
We are pleased to announce that the director of Institut Chiari & Siringomielia & Escoliosis de Barcelona Dr. Royo Salvador, has been invited to collaborate with the association Worldwide Syringomyelia & Chiari Task Force and to join the medical board of this association that is based in the United States. It aims to educate professionals…
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Publicado por CSSF el 4 July, 2016
The 3rd edition of the course Diagnosis and Treatment of the Filum Disease will be taking place in Barcelona, Spain, between 19 and 23 September 2015, organised by the Filum Academy Barcelona®, and offered by the “Institut Chiari & Siringomielia & Escoliosis de Barcelona”. This course is aimed at neurosurgeons, neurologists, orthopaedists, traumatologists, general practitioners,…
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Publicado por CSSF el 3 July, 2016
The Chiari & Scoliosis & Syringomyelia Foundation deeply thanks Maestro Andrea Bocelli, his wife Veronica and the whole Bocelli family for the attention received during the visit to the general rehearsal of the Teatro del Silencio (Lajatico). We hope that this first meeting will be a prelude to future collaborations for the benefit of the…
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Publicado por CSSF el 1 July, 2016
The “Chiari & Scoliosis & Syringomyelia Fundació Privada” congratulates the “Institut Chiari & Syringomyelia & Scoliosis of Barcelona (ICSEB)” for obtaining, the “Research and Development (R & D)” certification in May 2015 which was awarded by the Spanish Innovation Certification Agency (ACIE) and ENAC. This certificate was awareded for the Project “Research, development and application…
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Publicado por CSSF el 30 June, 2016
From the Chiari & Scoliosis & Syringomyelia Foundation, we are pleased bring you all the information about the request made this past Tuesday, May 12, by the Vice-President of the French Senate, Mme. Cartron to the Minister of Social Affairs, Health and women’s rights, Mme. Touraine. Link: http://www.francoisecartron.fr The tile of the request is called:…
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Publicado por CSSF el 29 June, 2016
The Chiari & Scoliosis & Syringomyelia Foundation (CSSf) has the pleasure of bringing you the new products that are made available to patients, doctors, relatives and the general public. As a novelty, this year the CSSf incorporates an expanded edition of the Filum System® A Short Guide in Spanish and a new edition…
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Publicado por CSSF el 27 June, 2016
Dear Emmanuelle and Sandrine, At Chiari & Scoliosis & Syringomyelia Foundation (CSSf) it’s a real privilege to accompany you in this intrepid journey, which, among other and no less praiseworthy, not only has objective the of raising awareness about the seriousness of the pathologies hidden under the generic “The Filum Disaese“, but also to…
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Publicado por CSSF el 26 June, 2016
Yesterday, on Wednesday 4th, an encounter between the writer and patient of ours, Mrs Natalia Kalinina, and Dr Miguel B. Royo Salvador took place in the main offices of the Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB). Her newest novel, “The Secret of the Black Book”, has recently seen its second edition…
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Publicado por CSSF el 25 June, 2016
Note from the Editor, Barely a month is left and the engines begin to roar, eager to cross the mysterious dunes of the Moroccan desert. Emmanuelle and Sandrine, will take the adventure to unsuspected limits with the desire to make podium in this 25th edition of one of the most demanding rallies in its specialty…..
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Publicado por CSSF el 24 June, 2016
The Chiari & Scoliosis & Syringomyelia Foundation (CSSf) as well as the Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB) wants to send a warm thank you to the different bodies, medical and research centres, physicians and the audience as a whole who came out and in spite of to rain to leave no seats available at this…
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Publicado por CSSF el 23 June, 2016
The city of Palermo dresses up for the presentation of an important event: “La storia della malattia del Filum Terminale dalla diagnosi al trattamento. Correlazioni cliniche con Scoliosi, Siringomièlia, Síndrome di Arnold-Chiari e Sindrome Fibromialgia” Renown specialists will be contributing to the ceremony, without doubt the presence of Dr Roberto MANTIA, Dr Marco DI GESÙ and that…
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Publicado por CSSF el 22 June, 2016
At Chiari & Scoliosis & Syringomyelia Foundation (CSSf) we are very happy to be able to thank the author Natalia Kalinina for her great gesture with Dr. Miguel B Royo Salvador and Marco V. Fiallos in dedicating her latest novel (already out in bookstores) to them, together with the entire team that forms part of…
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Publicado por CSSF el 21 June, 2016
Dear friends, I am very happy to join this presentation act today and will do my best to rise to the occasion. I promise to be brief. Today, we hold in our hands a very special book. It is special for several reasons: Firstly, because it is fruit of long working hours that have been…
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Publicado por CSSF el 20 June, 2016
Last October the Deputy Monsieur Yves Jégo addressed an official letter to the Minister of Social Affairs, Health and Women’s Rights Madame Marisol Touraine, informing about the treatment that is practiced in the Institut Chiari & Syringomyelia & Scoliosis of Barcelona. The French Deputy directly emphasizes in his letter how the option of one treatment…
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Publicado por CSSF el 19 June, 2016
On 14 November, we had the pleasure to witness the closure of the course “Diagnosis and treatment of the filum disease”, 2nd edition, in the main lecture room of the Filum Academy Barcelona®. The event was sponsored by the Chiari & Scoliosis & Syringomyelia Foundation and counted with the presence of Dr Alfonso Rodríguez-Baeza, Anatomy…
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Publicado por CSSF el 18 June, 2016
News update The 2nd edition of the course Diagnosis and Treatment of the Filum Disease will be taking place in Barcelona, Spain, between 10 and 14 November 2014, presented by the “Chiari & Scoliosis & Syringomyelia Foundation” (CSSF) through the “Filum Academy Barcelona®”, with the cooperation of the “Institut Chiari & Siringomielia & Escoliosis de Barcelona”. This course…
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Publicado por CSSF el 17 June, 2016
Barcelona, 29 of agosto 2014. The CHIARI & SCOLIOSIS & SYRINGOMYELIA FOUNDATION secretary highlights the efforts made by the French civil society by way of its representative, Mr. Yves Jégo, in delivering question nº 51309 to the ASAMBLÉE NATIONALE. We have the privilege of sharing it with you today.. Seeing how evidence-based medicine is winning…
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Publicado por CSSF el 16 June, 2016
Barcelona, a 21 de julio de 2014, A la atención del Maestro ANDREA BOCELLI, A la atención de la Sra. FRANCESCA FERRI, A la atención de la Asociación AI.SAC.SI.SCO Onlus, Apreciados amigos, Desde la “CHIARI & SCOLIOSIS & SYRINGOMYELIA Foundation” (CSSf) representa un autentico placer, poder agradecer el apoyo que nos brindan. Para todas las personas que…
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Publicado por CSSF el 15 June, 2016
News update The 2nd edition of the course Diagnosis and Treatment of the Filum Disease will be taking place in Barcelona, Spain, between 10 and 14 November 2014, presented by the “Chiari & Scoliosis & Syringomyelia Foundation” (CSSF) through the “Filum Academy Barcelona®”, with the cooperation of the “Institut Chiari & Siringomielia & Escoliosis de Barcelona”. This course…
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Publicado por CSSF el 14 June, 2016
The closure ceremony for the 1st INTERNATIONAL FILUM SYSTEM® SANITARY COURSE took place on Friday, 28 March, at the FILUM ACADEMY BARCELONA® ceremony hall. This course is the only one officially recognized in order to apply for the accreditation of the FILUM SYSTEM® SANITARY method. During five intensive workdays the doctors had the chance to learn first hand…
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Publicado por CSSF el 13 June, 2016
The Secretary of the CHIARI & SCOLIOSIS & SYRINGOMYELIA FOUNDATION, highlights the effort of the French civil society, through its representative M. Yves Jégo, which made question number 51309 reach to the ASAMBLÉE NATIONALE and we have the privilege of sharing with all of you. It is clearly motivating, for all of us who struggle…
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Publicado por CSSF el 12 June, 2016
Dear students: In the name of everyone at the FILUM ACADEMY BARCELONA®, we would like to welcome you all dearly to this academic year 2014-2015. Since ancient times, mankind has focused on dealing with symptoms of the most varied diseases. Centuries later we see that many of the great names in medicine, those that really…
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Publicado por CSSF el 11 June, 2016
The “Chiari & Scoliosis & Syringomyelia Foundation” has collaborated and is collaborating to organize meetings for the patients affected from “The Filum Disease”. These meetings have been held in Spain and in different European countries such as Italy and France, with the aim of disseminating the FILUM SYSTEM® and its results. It is also collaborating…
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Publicado por CSSF el 10 June, 2016
Barcelona, 13 March 2014. Next Friday, March 14, the official opening of the FILUM ACADEMY BARCELONA
Publicado por CSSF el 9 June, 2016
Last November, the first 5 years were completed, since the Chiari & Scoliosis & Syringomielia Foundation was presented to the society. Gone are those first days and today, we can feel proud as it is a complete reality. Therefore, it would not be fair to miss the opportunity to publicly recognize the efforts of its…
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Publicado por CSSF el 8 June, 2016
On November 16, in Rome, the Assembly of the members of the Association AI.SAC.SI.SCO Onlus met and the new Board of Directors was elected. The Chiari & Scoliosis & Syringomyelia Foundation congratulates the new president Mrs. Marisa D. Toscano and her board for her new position. And it encourages them to continue working for the…
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Publicado por CSSF el 7 June, 2016
The association AI.SAC.SI.SCO onlus, organizes a charity event on Saturday, June 1, 2013, at the Macomer Polifuncionale Center in Sardinia, to collect funds to help the patients affected by the “Filum Disease” (Arnold-Chiari I Syndrome, Syringomyelia and Idiopathic Scoliosis). Given the impossibility of physically and personally attending this event, by Dr. Miguel Bta. Royo Salvador,…
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Publicado por CSSF el 6 June, 2016
We are pleased to announce that the board of the “Il·lustre Col·legi d’Advocats de Barcelona” has decided unanimously to accept the appointment to sponsor of the Chiari & Scoliosis & Syringomyelia Foundation on 9th January 2012. Noticia vía: https://institutchiaribcn.com/el-ilustre-colegio-de-abogados-de-barcelona-nuevo-benefactor-de-la-fundacion/
Publicado por CSSF el 5 June, 2016
We are pleased to announce that next Monday, November 28th, at 20.00 hours our foundations’s 1st charity event will be held, the event consisting of a concert by the coral of the Il·lustre Col·legi d’Advocats de Barcelona (Law Society Barcelona), in the auditorium of the mentioned institution. The aim of the event is to raise…
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Publicado por CSSF el 10 October, 2008
The creation of the Chiari & amp; Scoliosis & amp; Syringomyelia Fundació Privada is the wish come true of Dr. Miguel Bta. Royo Salvador, with the aim of projecting to the future the medical-scientific discoveries of more than forty years of work and disclosing the causes and solutions of the Filum Disease. On 9th…
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