Publicado por CSSF el 25 June, 2016
Note from the Editor,
Barely a month is left and the engines begin to roar, eager to cross the mysterious dunes of the Moroccan desert.
Emmanuelle and Sandrine, will take the adventure to unsuspected limits with the desire to make podium in this 25th edition of one of the most demanding rallies in its specialty..
For the Association AI.SAC.SIS.CO, for the Chiari & Scoliosis & Syringomyelia Foundation (CSSf) and for all patients afflicted with The Filum disease, have already climbed to the top of the victor’s box.
They and all the team that accompanies them, will be the voice of all those who suffer in silence for a few days, of their relatives and friends who do not know when or how to help; they will be the voice of the effort of overcoming and of the daily fight against the Syndrome of Arnold-Chiari I, the Syringomyelia and the Idiopathic Scoliosis., disease which are classified within a generic, anodyne and unspecific noun: “Rare Diseases” due to the ignorance of some people.
Emmanuelle and Sandrine, count on our encouragement and our absolute respect. May the voyage be propitious to you…
