Personal Projects

YOUR IDEAS MATTER!

 

Would you like to help us spread knowledge about the Filum Disease and its treatment? You can participate with your personal projects, by organizing, for example, a sporting challenge, an original event or sharing your creations with us.

We love counting on you and your ideas!

Do you have any?

 
Contact us

Examples of Personal Projects

 

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Barcelona’s bar association helped CSSf to organize its 1st charity event which took place on 28 Noviembre 2011 in the auditorium of the “Il·lustre Col·legi d’Advocats de Barcelona”. More information.

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Emmanuelle and Sandrine are two brave athletes who participate every year in the Rally des Gazelles. We thank you for your dedication to the CSSf. More information.

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Representatives and members of the association AI.SAC.SI.SCO Onlus, especially: Mrs. Francesca Ferri, President Mrs. Marisa Toscano and Mrs. Rita Presbulgo; as well as all the patients and relatives who are part of the association helped to organize the meeting between the Maestro Andrea Bocelli and Dr. Royo Salvador during the final rehearsal for the Theater of Silence (Lajatico, ). More information

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On her album “Eclectic” from 2011, the French singer Laura Ierano mentioned Dr. Royo Salvador. In October 2017, she presented a mini-concert during the cultural event organized by the CSSF. More information.

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The Russian writer Natalia Kalinina dedicated her novel, The Secret of the Black Book, to Dr. Miguel B. Royo Salvador and the entire ICSEB team. Her novel is now in its third edition. More information.

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The Italian actress Rita Capobianco presented the show “Tutta colpa di Arnold” (“All because of Arnold”); written, directed and performed by herself with the original music of Angelo Donzelli. More information.

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The Italian dancer Annalisa Caicci presented a choreography to the rhythm of “Read all about it”, by Emeli Sandé, during the 2nd Cultural Event of the CSSf, in Rome. More information.

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The Italian dancer Francesca Ghisio Erba danced to the pulse of “La vita è bella” by Nicola Piovani, interpreting the poem by the Italian writer Marisa Toscano. More information.

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The Italian poet and painter Francesco Mauro presented some of his paintings and also the poems “Il mare” and “L’albero solitario” during the event of the CSSf. More information.

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The Catalan artist Ferrán Pérez Vivancos also decided to contribute to the cause the Filum Disease, exhibiting his works in the solidarity cultural event of the CSSf. More information.

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The Brazilian artist, Christina Apovian, participated at distance in the 2nd CSSf Cultural Event in Rome, sending her work “Da Vinci: the birth of Brazil”. More information.

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When Jonas Ribeiro from Brazil learned that a cultural solidarity event would be organized in favor of people diagnosed with the Filum Disease, he sent a drawing to the CSSf. More information.

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The Italian patient Maria Pia Ambrosio offered some images of her hand-painted works, which were exhibited at a cultural event of the CSSf in Rome. More information.

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The Brazilian artist José Mario Amaral participated, at distance, in the cultural event of the CSSF, presenting two of his works: “La Sirena Arena” and “Las siete serpientes”. More information.

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The Italian writer Marisa Toscano took part in the CSSf event by presenting the poem “…E poi Barcellona” accompanied by the choreography of the Italian dancer Francesca Ghisio Erba. More information.

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French poet Anthony Ierano participated with his poem La Malformation de Chiari in the event, read by his mother, Misses Marie Thèrese Ierano. More information.

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Three girls decided to contribute to the cause of the Filum Disease: the Belgian patient Lilou Van Dyck (9 years old) and the two Italian sisters Aurora (9 years old) and Alice (11 years old). More information.



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Contact

E-mail: cssf@chiarifoundationbcn.com

C/ de Pedro i Pons, nº 9-11 (Edificio Masters), 3º 3ª

08034 Barcelona, Spain

Tel. +34 932 066 406

Fax. +34 932 066 403