News

III Cultural Event. The Chiari & Scoliosis & Syringomyelia Foundation celebrated its 10th anniversary.

Publicado por el 30 October, 2018

On Friday October 26th, 2018, Chiari & Scoliosis & Syringomyelia Foundation’s 10th-anniversary celebration took place in the Auditorium of the Col·legi Oficial de Metges de Barcelona (Official Medical Board of Barcelona). The event was attended by more than a hundred people, including Mr Francesco Latronico, Deputy Consul Officer of the Consulate of Italy in Barcelona,…  

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Chiari & Scoliosis & Syringomyelia Foundation (CSSf) Celebrates the 10th anniversary of its foundation with its 3rd Cultural Event

Publicado por el 29 June, 2018

  The entry to the event is free. Please confirm your attendance by registering at the following link: https://www.eventbrite.es/e/entradas-tutta-colpa-di-arnold-48131301017   The Chiari & Scoliosis & Syringomyelia Foundation (CSSf), in collaboration with the Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB) and the Col.legi Oficial de Metges de Barcelona (Medical Board of Barcelona), organises an…  

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Our Foundation turns 10!!!

Publicado por el 20 June, 2018

  The Chiari & Scoliosis & Syringomyelia Fundació privada (CSSf) will be turning 10 years old in the upcoming month of November, during this year 2018. The CSSf was constituted with one basic goal, the reason for its creation; the propagation and application of the Dr. Miguel B. Royo-Salvador’s medical findings with the support and…  

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WE CONGRATULATE THE SECRETARY OF THE CSSf ON HIS 70TH BIRTHDAY

Publicado por el 10 May, 2018

      Today on May 10th, we congratulate Mr. Manuel M. Royo Salvador, Secretary of the Chiari & Scoliosis & Syringomyelia Foundation (CSSf) on his 70th birthday.. From the Institut Chiari & Siringomielia & Escolioisis de Barcelona and from the CSSf, we thank you for all your dedication and irreplaceable contribution to the mission…  

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Communication

Publicado por el 7 December, 2017

The Board of the Chiari & Scoliosis & Syringomyelia Private Foundation would like to remind interested patients that in compliance with one of CSSf’s founding objectives, namely social aid, and in the measures of the available financial resources, CSSf awards financial aid to cover part of the costs for the surgical procedure of the treatment…  

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Christmas campaign of the CSSf

Publicado por el 4 December, 2017

  Support CSSf in its struggle against the Filum Disease   Join our campaign!





II CUltural Event. 07.10.2017. Rome (Italy). Artistic expressions by patients, relatives and well-wishers affected by the Filum Disease

Publicado por el 18 October, 2017

On Saturday, October 7th 2017, at the Theatre San Luigi Guanella in Rome, the cultural solidarity event in support of patients with the diagnoses of the Arnold-Chiari Syndrome Type I, idiopathic Syringomyelia and Scoliosis and other conditions related to the Filum Disease. The event, that has been organized by the Chiari & Scoliosis & Syringomyelia…  

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Great reception of the first artistic event with patients in Rome

Publicado por el 9 October, 2017

On the afternoon of past Saturday, 7 October, at the Theatre San Luigi Guanella in Rome, the cultural solidarity event in support of patients with the diagnoses of the Arnold-Chiari Syndrome Type I, idiopathic Syringomyelia and Scoliosis and other conditions related to the Filum Disease. The event, that has been organized by the Chiari &…  

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The big day is finally here! 2nd Cultural Event Chiari & Scoliosis & Syringomyelia Foundation

Publicado por el 6 October, 2017

This weekend, the San Luigi Guanella Theatre in Rome, Italy, will be the setting of the cultural solidarity event in support of patients with the diagnoses of the Arnold-Chiari Syndrome Type I, idiopathic Syringomyelia and Scoliosis and other conditions related to the Filum Disease. The event, that has been organized by the Chiari & Scoliosis…  

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PROGRAMME OF THE CULTURAL SOLIDARITY EVENT IN SUPPORT OF FILUM DISEASE PATIENTS

Publicado por el 18 September, 2017

Ladies and Gentlemen, We are pleased to announce that the Chiari & Scoliosis & Syringomyelia Foundation (CSSf), in cooperation with the Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB) and the association AI.SAC.SI.SCO Onlus, is organizing a cultural solidarity event in support of patients with the diagnoses of the Arnold-Chiari Syndrome Type I, idiopathic…  

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2nd Cultural Event Chiari & Scoliosis & Syringomyelia Foundation

Publicado por el 21 July, 2017

Artistic expressions by patients, relatives and well-wishers affected by the Filum Disease We are pleased to inform you that the artistic solidarity event, organized by the Chiari & Scoliosis & Syringomyelia Foundation (CSSf) in collaboration with AI.SAC.SI.SCO Onlus Association and the Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB), will be held next 7…  

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Information note / Board meeting

Publicado por el 14 June, 2017

On June 7, 2017, a meeting of the Trustees of our Foundation took place at its registered office to approve the cessation of late Dr. Dn. Juan Solé Llenas as trustee and the appointment of Dr. Alfonso Rodríguez Baez and Mr. Luis Javier Antón Fernández as new trustees. Following are some of the relevant data…  

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In memory of Dr. Juan Solé Llenas

Publicado por el 9 June, 2017

  The “Chiari & Scoliosis & Syringomyelia Fundació Privada”, communicates that our trustee, Dr. Juan Solé Llenas, former director of the “Institut Neurològic de Barcelona” and author of the first book of Neuroradiology in Spanish, passed away on May 4, 2017.   The Foundation has expressed its deepest gratitude to his relatives, and now does…  

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Call: share your art and support Filum Disease patients

Publicado por el 17 May, 2017

Call to participate by the Chiari & Scoliosis & Syringomyelia Foundation (CSSf) Artistic expressions by patients, relatives and well-wishers affected by the Filum Disease   Share your art and support Filum Disease patients   The Chiari & Scoliosis & Syringomyelia Foundation (CSSf), in cooperation with the Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB)…  

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CSSf and ICSEB Welcome the Rally Team Fighting against Chiari.

Publicado por el 20 March, 2017

The members of the management teams of the Chiari & Scoliosis & Syringomyelia Foundation (CSSf) and the Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB) were at the Barcelona harbour past Sunday, 19th of March, to welcome the rally drivers that make up “Gazelles against Chiari”. One of them is Emmanuelle Tarquini, a patient…  

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Driver affected by the Arnold-Chiari Syndrome competes in International Rally

Publicado por el 16 March, 2017

French patient Emmanuelle Tarquini has an important date in March, the “Women’s Month”. On the morning of the 19th, she and her teammate, Cécilia Merló, will weigh anchor and leave from harbour of Barcelona for Morocco, where they will take part in the 27th edition of the Rallye Aïcha des Gazelles, the only off-road competition…  

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Filum System® A Short Guide very soon in 6 languages.

Publicado por el 8 July, 2016

Here at the Institut Chiari & Siringomielia & Escoliosis de Barcelona, we are pleased to announce that the book Filum System® A Short Guide is currently available in translation into French, Italian and Polish. Moreover, very soon it will be available in English and Russian. We hope that our hard work of translation will be…  

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News in the French television network France3 about our patients who are fighting for the reimbursement of their SFT surgery done at ICSEB

Publicado por el 6 July, 2016

Link of the news: https://france3-regions.francetvinfo.fr/haute-normandie/eure/guerie-en-espagne-laurence-se-bat-pour-etre-remboursee-par-la-securite-sociale-929483.html News summary: Laurence Guillois. Arnold-Chiari I syndrome. Idiopathic scoliosis, Multiple discopathy. Françoise Simon. Syringomyelia and idiopathic scoliosis. Multiple discopathy. Emmanuelle Tarquini, Arnold-Chiari I syndrome, Idiopathic scoliosis. The patients Laurence Guillois, Françoise Simon and Emmanuelle Tarquini are fighting to be reimbursed by the French social security and to get the surgical…  

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New collaboration with the association Worldwide Syringomyelia & Chiari Task Force

Publicado por el 5 July, 2016

We are pleased to announce that the director of Institut Chiari & Siringomielia & Escoliosis de Barcelona Dr. Royo Salvador, has been invited to collaborate with the association Worldwide Syringomyelia & Chiari Task Force and to join the medical board of this association that is based in the United States. It aims to educate professionals…  

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Diagnosis and treatment of the Filum Disease. 3rd edition.

Publicado por el 4 July, 2016

The 3rd edition of the course Diagnosis and Treatment of the Filum Disease will be taking place in Barcelona, Spain, between 19 and 23 September 2015, organised by the Filum Academy Barcelona®, and offered by the “Institut Chiari & Siringomielia & Escoliosis de Barcelona”. This course is aimed at neurosurgeons, neurologists, orthopaedists, traumatologists, general practitioners,…  

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GRATITUDE

Publicado por el 3 July, 2016

The Chiari & Scoliosis & Syringomyelia Foundation deeply thanks Maestro Andrea Bocelli, his wife Veronica and the whole Bocelli family for the attention received during the visit to the general rehearsal of the Teatro del Silencio (Lajatico). We hope that this first meeting will be a prelude to future collaborations for the benefit of the…  

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Accreditation: Research & Development

Publicado por el 1 July, 2016

The “Chiari & Scoliosis & Syringomyelia Fundació Privada” congratulates the “Institut Chiari & Syringomyelia & Scoliosis of Barcelona (ICSEB)” for obtaining, the “Research and Development (R & D)” certification in May 2015 which was awarded by the Spanish Innovation Certification Agency (ACIE) and ENAC. This certificate was awareded for the Project “Research, development and application…  

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VICE-PRESIDENT OF THE FRENCH SENATE OFFICIALLY ASKS THE MINISTER FOR SOCIAL AFFAIRS, HEALTH AND RIGHTS OF WOMEN, FOR THE REIMBURSEMENT OF EXPENSES TO THE PATIENTS TREATED AT ICSEB ACCORDING TO THE FILUM SYSTEM® METHOD

Publicado por el 30 June, 2016

From the Chiari & Scoliosis & Syringomyelia Foundation, we are pleased bring you all the information about the request made this past Tuesday, May 12, by the Vice-President of the French Senate, Mme. Cartron to the Minister of Social Affairs, Health and women’s rights, Mme. Touraine. Link: http://www.francoisecartron.fr The tile of the request is called:…  

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Chiari & Scoliosis & Syringomyelia Foundation (cssf) presents its new products for the year 2015

Publicado por el 29 June, 2016

The Chiari & Scoliosis & Syringomyelia Foundation (CSSf) has the pleasure of bringing you the new products that are made available to patients, doctors, relatives and the general public.     As a novelty, this year the CSSf incorporates an expanded edition of the Filum System® A Short Guide in Spanish and a new edition…  

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A picture is worth more than hundred words

Publicado por el 27 June, 2016

  Dear Emmanuelle and Sandrine, At Chiari & Scoliosis & Syringomyelia Foundation (CSSf) it’s a real privilege to accompany you in this intrepid journey, which, among other and no less praiseworthy, not only has objective the of raising awareness about the seriousness of the pathologies hidden under the generic “The Filum Disaese“, but also to…  

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A PLEASANT MEETING BETWEEN SCIENCE AND THE ARTS.

Publicado por el 26 June, 2016

Yesterday, on Wednesday 4th, an encounter between the writer and patient of ours, Mrs Natalia Kalinina, and Dr Miguel B. Royo Salvador took place in the main offices of the Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB).   Her newest novel, “The Secret of the Black Book”, has recently seen its second edition…  

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All set for the 25th edition of the Rally “Aïcha des Gazelles du Maroc”

Publicado por el 25 June, 2016

Note from the Editor, Barely a month is left and the engines begin to roar, eager to cross the mysterious dunes of the Moroccan desert. Emmanuelle and Sandrine, will take the adventure to unsuspected limits with the desire to make podium in this 25th edition of one of the most demanding rallies in its specialty…..  

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THE HISTORY OF THE FILUM DISEASE – FROM DIAGNOSIS TO TREATMENT.

Publicado por el 24 June, 2016

The Chiari & Scoliosis & Syringomyelia Foundation (CSSf) as well as the Institut Chiari & Siringomielia & Escoliosis de Barcelona (ICSEB) wants to send a warm thank you to the different bodies, medical and research centres, physicians and the audience as a whole who came out and in spite of to rain to leave no seats available at this…  

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THE FILUM DISEASE HAS THE LEADING ROLE IN A NEW INTERNATIONAL MEETING HOSTED BY THE CENTRO MEDICO MANTIA.

Publicado por el 23 June, 2016

  The city of Palermo dresses up for the presentation of an important event: “La storia della malattia del Filum Terminale dalla diagnosi al trattamento. Correlazioni cliniche con Scoliosi, Siringomièlia, Síndrome di Arnold-Chiari e Sindrome Fibromialgia” Renown specialists will be contributing to the ceremony, without doubt the presence of Dr Roberto MANTIA, Dr Marco DI GESÙ and that…  

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Chiari & Scoliosis & Syringomyelia Foundation (CSSf) thanks to the writer Natalia Kalinina.

Publicado por el 22 June, 2016

At Chiari & Scoliosis & Syringomyelia Foundation (CSSf) we are very happy to be able to thank the author Natalia Kalinina for her great gesture with Dr. Miguel B Royo Salvador and Marco V. Fiallos in dedicating her latest novel (already out in bookstores) to them, together with the entire team that forms part of…  

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SPEECH DELIVERED BY THE CSSf SECRETARY ON THE OCCASION OF THE PRESENTATION OF THE BOOK: Filum System® – A short guide.

Publicado por el 21 June, 2016

Dear friends, I am very happy to join this presentation act today and will do my best to rise to the occasion. I promise to be brief. Today, we hold in our hands a very special book. It is special for several reasons: Firstly, because it is fruit of long working hours that have been…  

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French health minister Madame Marisol Touraine is again questioned by the Deputies of the National Assembly, in relation to the effectiveness of the treatment practiced by the Institut Chari & Syringomyelia & Scoliosis de Barcelona.

Publicado por el 20 June, 2016

Last October the Deputy Monsieur Yves Jégo addressed an official letter to the Minister of Social Affairs, Health and Women’s Rights Madame Marisol Touraine, informing about the treatment that is practiced in the Institut Chiari & Syringomyelia & Scoliosis of Barcelona. The French Deputy directly emphasizes in his letter how the option of one treatment…  

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CLOSURE OF THE 2ND EDITION OF THE INTERNATIONAL COURSE DIAGNOSIS AND TREATMENT OF THE FILUM DISEASE.

Publicado por el 19 June, 2016

On 14 November, we had the pleasure to witness the closure of the course “Diagnosis and treatment of the filum disease”, 2nd edition, in the main lecture room of the Filum Academy Barcelona®. The event was sponsored by the Chiari & Scoliosis & Syringomyelia Foundation and counted with the presence of Dr Alfonso Rodríguez-Baeza, Anatomy…  

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DIAGNOSIS and TREATMENT of the “FILUM DISEASE”. 2ND edition.

Publicado por el 18 June, 2016

News update The 2nd edition of the course Diagnosis and Treatment of the Filum Disease will be taking place in Barcelona, Spain, between 10 and 14 November 2014, presented by the “Chiari & Scoliosis & Syringomyelia Foundation” (CSSF) through the “Filum Academy Barcelona®”, with the cooperation of the “Institut Chiari & Siringomielia & Escoliosis de Barcelona”. This course…  

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French Congressmen again call for more effective moves in the fight against Arnold-Chiari in Assemblée Nationale.

Publicado por el 17 June, 2016

Barcelona, 29 of agosto 2014. The CHIARI & SCOLIOSIS & SYRINGOMYELIA FOUNDATION secretary highlights the efforts made by the French civil society by way of its representative, Mr. Yves Jégo, in delivering question nº 51309 to the ASAMBLÉE NATIONALE. We have the privilege of sharing it with you today.. Seeing how evidence-based medicine is winning…  

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ANDREA BOCELLI para AI.SAC.SI.SCO Onlus y CSSF

Publicado por el 16 June, 2016

Barcelona, a 21 de julio de 2014, A la atención del Maestro ANDREA BOCELLI, A la atención de la Sra. FRANCESCA FERRI, A la atención de la Asociación AI.SAC.SI.SCO Onlus,   Apreciados amigos, Desde la “CHIARI & SCOLIOSIS & SYRINGOMYELIA Foundation” (CSSf) representa un autentico placer, poder agradecer el apoyo que nos brindan. Para todas las personas que…  

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II International Course on Filum System® Sanitary

Publicado por el 15 June, 2016

News update The 2nd edition of the course Diagnosis and Treatment of the Filum Disease will be taking place in Barcelona, Spain, between 10 and 14 November 2014, presented by the “Chiari & Scoliosis & Syringomyelia Foundation” (CSSF) through the “Filum Academy Barcelona®”, with the cooperation of the “Institut Chiari & Siringomielia & Escoliosis de Barcelona”. This course…  

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CLOSURE OF THE 1st INTERNATIONAL FILUM SYSTEM® MEDICAL COURSE.

Publicado por el 14 June, 2016

  The closure ceremony for the 1st INTERNATIONAL FILUM SYSTEM® SANITARY COURSE took place on Friday, 28 March, at the FILUM ACADEMY BARCELONA® ceremony hall. This course is the only one officially recognized in order to apply for the accreditation of the FILUM SYSTEM® SANITARY method. During five intensive workdays the doctors had the chance to learn first hand…  

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The Foundation supports the popular initiatives

Publicado por el 13 June, 2016

The Secretary of the CHIARI & SCOLIOSIS & SYRINGOMYELIA FOUNDATION, highlights the effort of the French civil society, through its representative M. Yves Jégo, which made question number 51309 reach to the ASAMBLÉE NATIONALE and we have the privilege of sharing with all of you. It is clearly motivating, for all of us who struggle…  

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Welcome letter

Publicado por el 12 June, 2016

Dear students: In the name of everyone at the FILUM ACADEMY BARCELONA®, we would like to welcome you all dearly to this academic year 2014-2015. Since ancient times, mankind has focused on dealing with symptoms of the most varied diseases. Centuries later we see that many of the great names in medicine, those that really…  

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Continued mission of the foundation

Publicado por el 11 June, 2016

The “Chiari & Scoliosis & Syringomyelia Foundation” has collaborated and is collaborating to organize meetings for the patients affected from “The Filum Disease”. These meetings have been held in Spain and in different European countries such as Italy and France, with the aim of disseminating the FILUM SYSTEM® and its results. It is also collaborating…  

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Inauguration ceremony of the Filum Academy Barcelona®

Publicado por el 10 June, 2016

Barcelona, 13 March 2014. Next Friday, March 14, the official opening of the FILUM ACADEMY BARCELONA





5 years of the history

Publicado por el 9 June, 2016

Last November, the first 5 years were completed, since the Chiari & Scoliosis & Syringomielia Foundation was presented to the society. Gone are those first days and today, we can feel proud as it is a complete reality. Therefore, it would not be fair to miss the opportunity to publicly recognize the efforts of its…  

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New of AI.SAC.SI.SCO Onlus

Publicado por el 8 June, 2016

On November 16, in Rome, the Assembly of the members of the Association AI.SAC.SI.SCO Onlus met and the new Board of Directors was elected. The Chiari & Scoliosis & Syringomyelia Foundation congratulates the new president Mrs. Marisa D. Toscano and her board for her new position. And it encourages them to continue working for the…  

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A CHARITY EVENT

Publicado por el 7 June, 2016

The association AI.SAC.SI.SCO onlus, organizes a charity event on Saturday, June 1, 2013, at the Macomer Polifuncionale Center in Sardinia, to collect funds to help the patients affected by the “Filum Disease” (Arnold-Chiari I Syndrome, Syringomyelia and Idiopathic Scoliosis). Given the impossibility of physically and personally attending this event, by Dr. Miguel Bta. Royo Salvador,…  

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Barcelona Bar Association new sponsor of the foundation

Publicado por el 6 June, 2016

We are pleased to announce that the board of the “Il·lustre Col·legi d’Advocats de Barcelona” has decided unanimously to accept the appointment to sponsor of the Chiari & Scoliosis & Syringomyelia Foundation on 9th January 2012.   Noticia vía: https://institutchiaribcn.com/el-ilustre-colegio-de-abogados-de-barcelona-nuevo-benefactor-de-la-fundacion/





1st charity event of the Chiari & Scoliosis & Syrongomyelia Foundation

Publicado por el 5 June, 2016

We are pleased to announce that next Monday, November 28th, at 20.00 hours our foundations’s 1st charity event will be held, the event consisting of a concert by the coral of the Il·lustre Col·legi d’Advocats de Barcelona (Law Society Barcelona), in the auditorium of the mentioned institution. The aim of the event is to raise…  

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The inauguration of CSSf

Publicado por el 10 October, 2008

The creation of the Chiari & amp; Scoliosis & amp; Syringomyelia Fundació Privada is the wish come true of Dr. Miguel Bta. Royo Salvador, with the aim of projecting to the future the medical-scientific discoveries of more than forty years of work and disclosing the causes and solutions of the Filum Disease.   On 9th…  

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Contact

E-mail: cssf@chiarifoundationbcn.com

C/ de Pedro i Pons, nº 9-11 (Edificio Masters), 3º 3ª

08034 Barcelona, Spain

Tel. +34 932 066 406

Fax. +34 932 066 403