For a future without

Arnold-Chiari I Syndrome, Scoliosis and Syringomyelia

For a future without

Arnold-Chiari I Syndrome, Scoliosis and Syringomyelia

We investigate the following diseases

Arnold-Chiari I

Arnold-Chiari I Syndrome (ACHS.I) is the herniation of the cerebellar tonsils through the foramen magnum into the spinal canal without any other malformation of the nervous system.

Scoliosis

Idiopathic Scoliosis (I.SCO) is a lateral deviation of the spine. It is usually observed in the age of growth.

Syringomyelia

Idiopathic Syringomyelia (I.SM) is characterized by the appearance of fluid-filled cystic cavities in the spinal cord.

The Filum Disease is caused by an abnormal traction of the filum terminale ligament. It manifests itself with symptoms and signs affecting the entire nervous system, skull and spine. All three conditions are the expressions of this disease and may share the same symptoms.

The Filum Disease

For a better future for the patients

At the "Chiari & Scoliosis & Syringomyelia Foundation we work to help patients suffering from the Filum Disease to receive the best possible treatment that improves their quality of life. We support research to help to broaden the understanding of this disease and promote training for all those specialists who are interested in learning about this condition, which is so common and yet so unknown until now.

Social Aid

We improve the future of patients affected by the Filum Disease. You can participate in helping them!

Research

We back research projects and ideas that help to innovate scientific knowledge, to fight the disease more efficiently.

Training

We promote teaching professionals who share our passion for science and the public dissemination of the findings about the condition.

We are a non-profit organization that exists thanks to donations and subsidies

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Award for Dr Royo-Salvador’s career.

We have pleasure to announce that Dr. Miguel B. Royo-Salvador, President of the Chiari & Scoliosis & Syringomyelia Foundation, has been honoured as a member of the Distinguished Academy of Science and Health Ramón y Cajal las 23 February 2019 for his research and international standing. Press release Distinguished Academy Ramón y Cajal

28 February 2019, Rare Disease Day

The theme for Rare Disease Day this year is “bridging health and social care”, with the objective of bridging the gaps of communication and coordination among all services, to improve the patient’s well-being. Knowledge and information are key for both medical and social professionals, as well as for patients and their families. Understanding the disease…