28 February 2019, Rare Disease Day

Publicado por el 28 February, 2019

The theme for Rare Disease Day this year is “bridging health and social care”, with the objective of bridging the gaps of communication and coordination among all services, to improve the patient’s well-being.

Knowledge and information are key for both medical and social professionals, as well as for patients and their families. Understanding the disease and the options that are available to manage it can positively influence the patient’s quality of life.

Since its constitution, the Chiari & Scoliosis & Syringomyelia Foundation, together with the Institut Chiari & Siringomielia & Escoliosis de Barcelona, and the Filum Academy Barcelona, promotes research, training and dissemination of knowledge about the new Filum Disease, which has been acquired in over 40 years’ work.

With his doctoral thesis in 1992, Dr. Royo Salvador proved the theory that considers several diseases of unknown cause, such as Arnold-Chiari Syndrome Type I, Idiopathic Syringomyelia, Idiopathic Scoliosis, Platybasia, Basilar invagination, Odontoid retroflexion, Brain stem kinking, as part of a new disease concept (the Filum Disease) and that they share a common cause (spinal cord and entire nervous system traction).

For the diagnosis, treatment and follow-up of the Filum Disease and the related conditions, the Filum System® health method has been designed. This protocolized system includes among its treatments the sectioning of the Filum Terminale with minimally invasive surgical technique, which halts the progression of the disease and improves its symptoms with almost no risks nor complications.

Arnold-Chiari Syndrome Type I, Idiopathic Syringomyelia, Idiopathic Scoliosis and other conditions considered to be of unknown cause, are manifestations of the Filum Disease and today they have a treatment.

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